COMING SOON: Speaker agendas for the patient education symposium.
Watch this page for updates.
Rock from the Heart’s mission is to support families from diagnosis to recovery by connecting them with resources and information that is often hard to find. Through concerts and education events. Rock from the Heart uses music to inspire and provide hope to people affected by aortic disease.
After a diagnosis of aortic valve disease and an aortic aneurysm in 2015, Pete and Amy Johnson learned firsthand the lack of information available. There is a lot of misinformation and lack of resources about aortic conditions, and the Johnsons were frustrated and disheartened by how much conflicting advice they received from different doctors and online resources.
Living through the experience, they realized all the doom and gloom on the internet was not the true story for most patients with aortic disease. The Johnsons embarked on a journey to share the details of their experience— and the hope they eventually found-- so others faced with a similar diagnosis are not left searching for answers.
The Johnsons founded Rock from the Heart after Pete’s open-heart surgery in 2017, building on their mission to raise awareness and lessen fears about aortic conditions.
Rock from the Heart events help bring the condition into the forefront. We are committed to increasing public awareness and to improving the diagnosis and management of these life-threatening conditions.