Rock from the Heart

After a diagnosis of aortic valve disease and an aortic aneurysm, Pete and Amy Johnson learned firsthand the lack of information and resources available.

When Pete’s condition was discovered, he had no symptoms. He felt fine.

Pete decided that once he recovered, he wanted to find a way to help others find good information and share positive stories of survival, so they wouldn't be so scared.

They founded Rock from the Heart to raise awareness and lessen fears about aortic conditions.

Rock from the Heart hosts an annual patient education symposium, dinner, VIP party and concert. Through concerts and education events, Rock from the Heart uses music to inspire and provide hope to people affected by aortic disease.

"Knowledge is power when it comes to your health, and aortic conditions are not exception. We want to share the details of our journey so people aren't left searching for answers." --Pete and Amy Johnson, Rock from the Heart founders

Pete and Amy Johnson

Rock from the Heart Founders

Aortic Awareness

Heart Health

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Aortic Disease information and resources

Our Mission

Rock from the Heart’s mission is to support families from diagnosis to recovery by connecting them with resources and information that is often hard to find. Through concerts and education events, Rock from the Heart uses music to inspire and provide hope to people affected by aortic disease.

The issue

· Up to 47,000 people die each year from all types of aortic disease, often undetected, making aortic disease a silent killer.

· Thoracic aortic aneurysms affect approximately 15,000 people in the United States each year.

· Because aortic disease is rare, there is limited information available to those at risk and to those diagnosed with the condition.

Knowledge is powerful when it comes to your health.

· Rock from the Heart supports families from diagnosis to recovery by connecting them with resources and information that is often hard to find.

· When families know the basics surrounding aortic disease, they will know how to be the best possible advocate for themselves when it comes to making medical decisions.

Awareness is key to survival. Rock from the Heart events help bring the condition to the forefront.

Through concerts and education events, Rock from the Heart uses music to inspire and provide hope to people affected by aortic disease.

Rock from the Heart is focused on developing resources designed to educate the public on methods for diagnosis, treatment and management of aortic disease and by advocating for early detection, meaningful support, and timely access to appropriate treatment for all people affected.

· Communicating new information on aortic disease to the public

· Raising awareness of the symptoms and severity of aortic disease within at-risk and underserved populations so that it is no longer THE silent killer

· Reducing the toll of aortic disease by addressing barriers to diagnosis, treatment, and follow up care

· Providing a voice for aortic disease patients to improve access to appropriate diagnosis and treatment, improving quality of life and overall outcomes

Rare Patient Voice

Rare Patient Voice is built on the core values of being a good resource for our patients, a good partner to our clients, a good employer for our staff, and a good citizen in our community. We are always listening to three key voices -- our patients, clients and employees. The company models these values through: Integrity – We know and do what is right for our patients, clients and employees.

Respect – We treat others the way we want to be treated. Innovation – We are open to new ideas and ways of doing things that improve the experience for our patients, clients and employees.

Improvement – We will make mistakes - but we will acknowledge them, fix them, and learn from them. Responsibility – We embrace opportunities to contribute and take ownership of our work.

Learn more HERE

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Rock from the heart 2023 announcements coming soon

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