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Rock from the Heart - Empowering Communities
Our organization is dedicated to empowering communities by providing resources, education, and support to those in need. We believe that everyone deserves access to a better life, and we work tirelessly to make that a reality. Through our programs and partnerships, we strive to create a more equitable and just society for all. Join us in our mission to make a difference!
About our Mission
Learn about the Rock from the Heart Mission and find links to aortic disease resources and information HERE.
Sponsorship Opportunites
Teaming with Rock from the Heart offers your organization tremendous marketing opportunities. Click here to learn more.
Video
Have you visited our YouTube channel? Click here to view replays from past symposiums, concert clips, and music videos.
In the Media
Partner Resources
Partner Resources
Rock from the Heart in the news
Visit this page to see what we have been up to.
Partner Resources
Partner Resources
Partner Resources
Collaborating with organizations that align with our vision allows us to maximize the sharing of resources, knowledge and support.
Aortic Health Education and Awareness
Who we are
We are a virtual family of educators, survivors, and music fans working to create an inclusive and engaged community of support, encouragement, and awareness.
Our Story
Read more survivor stories HERE
After a diagnosis of aortic valve disease and an aortic aneurysm, Pete and Amy Johnson learned firsthand the lack of information and resources available.
Rock from the Heart was born from a vision of hope and determination as Pete lay in his hospital bed prior to surgery.
Faced with a life-altering aortic disease diagnosis, he and his wife, Amy, found strength in their love for each other and their shared passion for music. Amid the uncertainty and fear, the couple envisioned a way to bring awareness to aortic health and support others on similar journeys.
This vision grew into Rock from the Heart, a nonprofit organization that combines the power of music with a mission to educate and inspire. Today, Rock from the Heart hosts events that raise awareness about heart disease, provide resources for patients and families, and culminates in an annual benefit concert where they rock from the heart.
Their story shows how a spark of hope in the darkest of times can ignite a movement that touches countless lives.
"Knowledge is power when it comes to your health, and aortic conditions are not exception. We want to share the details of our journey so people aren't left searching for answers." --Pete and Amy Johnson, Rock from the Heart founders
Pete and Amy Johnson
Rock from the Heart Founders
Aortic Disease information and resources
Our Mission
Rock from the Heart's mission is to proactively educate people about aortic and heart valve disease, bridge the gap between impacted families and the support they need, connect those diagnosed with vital resources, and inspire all through the healing power of music.
Who we are:
We are a virtual family of educators, survivors, and music fans working to create an inclusive and engaged community of support, encouragement, and awareness.
Why It Matters:
Aortic diseases, including aortic valve disease, aortic aneurysms and dissections, are silent killers. They often strike without warning, and early diagnosis is critical. Patients need support, education, and resources to navigate this complex healthcare landscape and receive life-saving treatment.
What We Do:
Support and Education: We offer support, resources, and educational programs for patients and their families. Knowledge is power, and we empower people affected by aortic disease with information to assist them in making informed decisions.
Inspiration: We use the power of music to uplift the spirits of people and families affected by aortic disease, and provide an opportunity to connect with survivors at each benefit concert.
The issue
· Up to 47,000 people die each year from all types of aortic disease, often undetected, making aortic disease a silent killer.
· Thoracic aortic aneurysms affect approximately 15,000 people in the United States each year.
· Because aortic disease is rare, there is limited information available to those at risk and to those diagnosed with the condition.
· Thoracic aortic aneurysms affect approximately 6 to 10 individuals per every 100,000 people. However, the exact number is not well-defined since many of these aneurysms cause no symptoms and may go undiagnosed.
· More than 11 million Americans are living with heart valve disease, yet 3 out of 4 Americans know little to nothing about it.
Knowledge is powerful when it comes to your health.
· Rock from the Heart supports families from diagnosis to recovery by connecting them with resources and information that is often hard to find.
· When families know the basics surrounding aortic disease, they will know how to be the best possible advocate for themselves when it comes to making medical decisions.
Awareness is key to survival. Rock from the Heart events help bring the condition to the forefront.
Through concerts and education events, Rock from the Heart uses music to inspire and provide hope to people affected by aortic disease.
Rock from the Heart is focused on developing resources designed to educate the public on methods for diagnosis, treatment and management of aortic disease and by advocating for early detection, meaningful support, and timely access to appropriate treatment for all people affected.
· Communicating new information on aortic disease to the public
· Raising awareness of the symptoms and severity of aortic disease within at-risk and underserved populations so that it is no longer THE silent killer
· Reducing the toll of aortic disease by addressing barriers to diagnosis, treatment, and follow up care
· Providing a voice for aortic disease patients to improve access to appropriate diagnosis and treatment, improving quality of life and overall outcomes
Heart Valve Disease Awareness Day - February 22nd
As many as 11 million Americans have heart valve disease (HVD)—a potentially disabling and deadly disease—yet 3 out of 4 Americans know little to nothing about HVD.
Join the movement to raise awareness about heart valve disease and protect patient lives.
Learn more about the campaign HERE
Global Heart Hub
Global Heart Hub is the first global non-profit umbrella organisation of patient organisations and patient advocates to provide a voice for those living with or affected by cardiovascular disease.
Learn more about the campaign HERE
2022 ACC/AHA Guideline for the Diagnosis and Management of Aortic Disease
The 2022 American College of Cardiology/American Heart Association Guideline for the Diagnosis and Management of Aortic Disease (ACC/AHA Aortic Disease Guideline) provides guidance for clinicians on the “diagnosis, genetic evaluation and family screening, medical therapy, endovascular and surgical treatment, and long-term surveillance of patients with aortic disease.”
American Heart Association
In an effort to improve the timely diagnosis and treatment of aortic stenosis, the American Heart Association, has launched its Target: Aortic Stenosis initiative, a program aimed to improve adherence to the valvular heart disease guidelines and improve outcomes along the patient journey
Aortic Hope
Aortic Hope is a community of Aortic Disease patients, survivors, and caregivers. We Spread Hope, Create Awareness and Provide Support to patients, survivors, and caregivers during the recovery and management of aortic disease.
Think Aorta
The Think Aorta US campaign is committed to saving lives. Our goal is to provide education and awareness to increase timely and correct identification and diagnosis of aortic disease
Rare Patient Voice
Rare Patient Voice is built on the core values of being a good resource for our patients, a good partner to our clients, a good employer for our staff, and a good citizen in our community. We are always listening to three key voices -- our patients, clients and employees. The company models these values through: Integrity – We know and do what is right for our patients, clients and employees.
Respect – We treat others the way we want to be treated. Innovation – We are open to new ideas and ways of doing things that improve the experience for our patients, clients and employees.
Improvement – We will make mistakes - but we will acknowledge them, fix them, and learn from them. Responsibility – We embrace opportunities to contribute and take ownership of our work.
Learn more HERE